A new study reveals that people with psoriatic arthritis (PsA) often have concerns that their doctors don’t prioritize. PsA is a chronic condition that causes joint pain, swelling, stiffness, and fatigue. But beyond these physical symptoms, patients also face emotional challenges, like worries about sleep problems and future health.
The study, published in ACR Open Rheumatology, found that while both patients and doctors focus on physical symptoms like pain and joint damage, patients are more concerned about non-physical issues. These include access to care, daily activities, stiffness, uncertainty about the future, and sleep quality. Doctors, however, tend to prioritize measurable symptoms, such as joint damage and psoriasis severity.
Why the Gap Exists
Researchers gathered 52 PsA patients and 13 clinicians to discuss their top concerns. Both groups agreed on the importance of physical symptoms like arthritis, fatigue, and pain. But patients ranked non-physical issues much higher than their doctors did.
One reason for this disconnect is time. “A typical rheumatology visit might only last 20 minutes—or less,” says Dr. Orrin Troum, a rheumatologist and professor at the University of Southern California. “Doctors often focus on arthritis and disease activity, leaving little time for other concerns like fatigue or sleep quality.”
Dr. Philip J. Mease, the study’s author, adds that many doctors don’t routinely ask about issues like fatigue or emotional vulnerability. “These aren’t always on their checklist,” he says.
Another factor is that some symptoms, like stiffness, are harder to measure than others. “Stiffness is less concrete than joint pain, so it might not be addressed unless the patient brings it up,” explains Dr. Mease.
How to Make Your Voice Heard
Patients shouldn’t feel ignored or unheard during appointments. “Shared decision-making is crucial,” says Dr. Troum. “If patients feel their concerns aren’t addressed, they’re less likely to follow treatment plans.”
To ensure your concerns are discussed, Dr. Troum suggests booking extra time for appointments or asking your doctor to save a few minutes at the end for your questions. He also recommends writing down your top three concerns before the visit. “This helps patients get their questions answered, even if time is short,” he says.
Support networks can also play a key role. “Psoriatic arthritis is a complex disease, and patients need a team of caregivers, including mental health professionals,” says Dr. Mease. Support groups, like those offered by the Arthritis Foundation, can provide a space to share experiences and get advice from others facing similar challenges.
Takeaway
If your doctor doesn’t bring up a concern that’s important to you, don’t hesitate to speak up. “Be open and transparent about your worries,” advises Dr. Mease. “Your doctor likely wants to build a trusting relationship and address all aspects of your health.”
By advocating for yourself and seeking support, you can ensure that both your physical and emotional needs are met in your PsA treatment journey.
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