A 68-year-old woman from Sheffield, who developed a rare and life-threatening cancer linked to her breast implants, is warning others about the potential dangers. Susan Axelby was diagnosed with breast-implant associated anaplastic large-cell lymphoma (BIA-ALCL) after undergoing breast implant surgery to reduce her risk of inherited breast cancer. Her experience highlights the rare but serious risks associated with certain types of breast implants.
In October 2023, Susan received a £57,000 settlement from Allergan Limited, marking one of the first known payouts in the UK related to Allergan breast implants. The pharmaceutical company, however, did not admit liability in the case.
A Personal Ordeal with a Rare Cancer
Susan’s journey began when she had her natural breasts removed to avoid inherited breast cancer. However, years later, she noticed unusual swelling in one of her implanted breasts, which led to the discovery of BIA-ALCL. This cancer, which affects the immune system rather than the breast tissue itself, can develop in the scar tissue surrounding breast implants.
Reflecting on her diagnosis, Susan expressed her disbelief: “I was in denial because I’d had my breasts removed to prevent cancer, and now I was facing it again. It felt like an impossible situation.”
A Warning for Others
In her first broadcast interview on BBC Radio 4’s Woman’s Hour, Susan issued a stark warning to other women, especially younger ones who might be unaware of the risks associated with their implants. “There are young girls walking around like timebombs,” she said. “They’ve no idea what’s in their body now, and if it’s happened to me and a few others, it could happen to them too.”
The Growing Concern and Legal Action
The Medicines and Healthcare products Regulatory Agency (MHRA) is currently collecting data on BIA-ALCL cases in the UK, with at least 106 reports linked to surgery involving six different manufacturers. In 2019, Allergan issued a voluntary global recall of Biocell textured breast implants, which are believed to be associated with the risk of developing BIA-ALCL.
Despite the recall, the MHRA advises that there is no need for individuals with breast implants who do not exhibit symptoms to have them removed. However, women experiencing unusual symptoms, such as swelling around the implant, are urged to seek medical attention immediately.
Susan’s case is part of a broader movement, with other affected individuals in the UK and the Netherlands taking legal action against Allergan. In the Netherlands, a group is seeking compensation on behalf of 60,000 women.
The Human Impact
Susan now lives without implants, breast tissue, or nipples, which has severely impacted her confidence and wellbeing. She continues to battle anxiety and depression, a stark reminder of the profound physical and emotional toll this rare condition can have.
“I don’t like anyone to see me without clothes on, not even my husband, though he’s not bothered at all,” Susan shared. “I have bad days. The psychological scars are just as deep as the physical ones.”
Conclusion
Susan’s story serves as a powerful reminder of the importance of awareness and vigilance when it comes to breast implants. While the risk of developing BIA-ALCL is rare, the consequences can be life-altering. The MHRA and health professionals continue to monitor the situation closely, urging anyone with concerns to consult their doctor.
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